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Specific websites for selected topics
1. Achondroplasia:
The Magic Foundation. http://www.magicfoundation.org/
March of Dimes: http://www.marchofdimes.com/professionals/681_1204
2. Achoo Syndrome
UCSF Medical Center: http://www.ucsf.edu/humgene/photic_sneeze_reflex.htm
3. ADHD (Attention Deficit Hyperactivity Disorder)
Attention Deficit Disorder Association: http://www.add.org/
CHADD: http://www.chadd.org
4. ALS (Amyotrophic Lateral Sclerosis)
The ALS Association. http://www.alsa.org/
National
Institute of
Neurological Disorders and Stroke: http://www.ninds.nih.gov/health_and_medical/pubs/als.htm
5. Autism
The Autism Society of America: http://www.autism-society.org/site/PageServer
Autism Speaks: http://www.autismspeaks.org/
6. Brain Cancer
Abramson
Cancer
Center of the
University of
Pennsylvania. “Neuro-Oncology Program: About Brain and Central Nervous System Tumors,” OncoLink
National Cancer Institute. “Brain Tumor Home Page,” www.cancer.gov
7. Childhood onset diabetes
Department of Health and Human Services. Centers for Disease Control and Prevention. Diabetes projects. http://www.cdc.gov/diabetes/projects/diab_child.htm
American Diabetes Association: http://www.diabetes.org/home.jsp
8. Color Blindness
Montgomery, Geoffrey. “Color Blindness: More Prevalent Among Males,” Breaking the code of color. Howard Hughes Medical Institute. http://www.hhmi.org/senses/b130.html
9. Cri du chat
Five P Minus Society. http://www.fivepminus.org/
U.S. National Library of Medicine and National Institutes of Health. “Cri du chat syndrome,” Medical Encyclopedia. MedlinePlus. http://www.nlm.nih.gov/medlineplus/ency/article/001593.htm
10. Cystic fibrosis
Cystic Fibrosis Foundation: http://www.cff.org/
11. Down Syndrome
National Down Syndrome Society: http://www.ndss.org/
Nemours Foundation: http://kidshealth.org/parent/medical/genetic/down_syndrome.html
12. Ehlers-Danlos
Ehlers-Danlos National Foundation: http://www.ednf.org/
Ehlers-Danlos Support Group: http://www.ehlers-danlos.org/
13. Epilepsy
Epilepsy Foundation: http://www.epilepsyfoundation.org/
International League Against Epilepsy: http://www.ilae.org/
14. Hair Loss Syndrome (Genetic Baldness)
Medline Plus (National Library of Medicine):
http://www.nlm.nih.gov/medlineplus/ency/article/003246.htm
15. Hemophilia
National Hemophilia Foundation: http://www.hemophilia.org/
Mayo Clinic: http://www.mayoclinic.com/invoke.cfm?id=DS00218
16. Huntington’s disease
Huntington's Disease Society of America: http://www.hdsa.org/
Mayo Clinic: http://www.mayoclinic.com/invoke.cfm?id=DS00401
17. Klinefelters’ syndrome
American Association for Klinefelter Syndrome Information and Support: http://www.aaksis.org/
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/klinefelterssyndrome.html
18. Marfan’s Syndrome
National Marfan Foundation: http://www.marfan.org/nmf/index.jsp
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/marfansyndrome.html
19. Multiple Sclerosis
National Multiple Sclerosis Society: http://www.nmss.org/
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/multiplesclerosis.html
20. Muscular Dystrophy
The Muscular Dystrophy Association: http://www.mdausa.org/
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/musculardystrophy.html
21. Myotonic Dystrophy
International Myotonic Dystrophy Organization: http://www.myotonicdystrophy.org/
Mayo Clinic:
http://www.mayoclinic.com/health/muscular-dystrophy/DS00200/DSECTION=2
22. Narcolepsy
Center for Narcolepsy: http://med.stanford.edu/school/Psychiatry/narcolepsy/
Mayo Clinic: http://www.mayoclinic.com/health/narcolepsy/DS00345
23. Obsessive-Compulsive Disorder
Obsessive Compulsive Foundation: http://www.ocfoundation.org/
Mayo Clinic:
http://www.mayoclinic.com/health/obsessive-compulsive-disorder/DS00189
24. Parkinson's Disease
National Parkinson's Foundation: http://www.parkinson.org/
Medline Plus (National Library of Medicine):
http://www.nlm.nih.gov/medlineplus/parkinsonsdisease.html
25. PKU (Phenylketonuria)
National PKU News: http://www.pkunews.org/
Medline Plus (National Library of Medicine):
http://www.nlm.nih.gov/medlineplus/phenylketonuria.html
26. Primordial Dwarfism
Nemours Foundation:
http://www.nemours.org/internet?url=no/dysplasia/primordial.html
27. Progeria
The Progeria Research Foundation: http://www.progeriaresearch.org/
Medline Plus (National Library of Medicine):
http://www.nlm.nih.gov/medlineplus/ency/article/001657.htm
25. Sickle-cell anemia
The American Sickle Cell Association: http://www.ascaa.org/
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/sicklecellanemia.html
27. SCID (Severe Combined Immunodeficiency)
The SCID Homepage: http://www.scid.net/
Nemours Foundation: http://www.kidshealth.org/parent/medical/allergies/severe_immunodeficiency.html
28. Spina Bifida
Spina Bifida Association of
America: http://www.sbaa.org/
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/spinabifida.html
29. Tay-Sachs Disease
National Tay-Sachs & Allied Diseases Association, Inc.: http://www.ntsad.org/
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/taysachsdisease.html
30. Turner’s Syndrome
The Magic Foundation’s Turner’s Syndrome Page : http://www.magicfoundation.org/www/docs/115/turner_syndrome.html
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/turnerssyndrome.html
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