Specific websites for selected topics
Achondroplasia:
The Magic Foundation. http://www.magicfoundation.org/
March of Dimes: http://www.marchofdimes.com/professionals/681_1204
Achoo Syndrome
UCSF Medical Center: http://www.ucsf.edu/humgene/photic_sneeze_reflex.htm
ADHD (Attention Deficit Hyperactivity Disorder)
Attention Deficit Disorder Association: http://www.add.org/
CHADD: http://www.chadd.org
ALS (Amyotrophic Lateral Sclerosis)
The ALS Association. http://www.alsa.org/
National
Institute of
Neurological Disorders and Stroke: http://www.ninds.nih.gov/health_and_medical/pubs/als.htm
Angelman Syndrome
Angelman Syndrome Foundation http://www.angelman.org/ Check out the Quick Links on the right side of this website.
Gene Reviews: Angelman Syndrome http://www.geneclinics.org/profiles/angelman/details.html Sponsored by the NIH and the University of Washington, Seattle
Online Mendelian Inheritance in Man - Angelman http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=105830 Here's some serious information.
Personal webpage: Army of Angels http://www.armyofangels.org/
MedicineNet http://www.medicinenet.com/angelman_syndrome/article.htm
Autism
The Autism Society of America: http://www.autism-society.org/site/PageServer
Autism Speaks: http://www.autismspeaks.org/
Brain Cancer
Abramson
Cancer
Center of the
University of
Pennsylvania. “Neuro-Oncology Program: About Brain and Central Nervous System Tumors,” OncoLink
National Cancer Institute “Brain Tumor Home Page,” www.cancer.gov
Childhood onset diabetes
Department of Health and Human Services. Centers for Disease Control and Prevention. Diabetes projects. http://www.cdc.gov/diabetes/projects/diab_child.htm
American Diabetes Association: http://www.diabetes.org/home.jsp
Color Blindness
Montgomery, Geoffrey. “Color Blindness: More Prevalent Among Males,” Breaking the code of color. Howard Hughes Medical Institute. http://www.hhmi.org/senses/b130.html
Cri du chat
Five P Minus Society. http://www.fivepminus.org/
U.S.
National Library of Medicine and National Institutes of Health. “Cri du chat syndrome,” Medical Encyclopedia. MedlinePlus. http://www.nlm.nih.gov/medlineplus/ency/article/001593.htm
Cystic fibrosis
Cystic Fibrosis Foundation: http://www.cff.org/
Down Syndrome
National Down Syndrome Society: http://www.ndss.org/
Nemours Foundation: http://kidshealth.org/parent/medical/genetic/down_syndrome.html
Ehlers-Danlos
Ehlers-Danlos National Foundation: http://www.ednf.org/
Ehlers-Danlos Support Group: http://www.ehlers-danlos.org/
Epilepsy
Epilepsy Foundation: http://www.epilepsyfoundation.org/
International League Against Epilepsy: http://www.ilae.org/
Hair Loss Syndrome (Genetic Baldness)
Medline Plus (National Library of Medicine):
http://www.nlm.nih.gov/medlineplus/ency/article/003246.htm
Hemochromatosis
http://www.mayoclinic.com/health/hemochromatosis/DS00455
Hemophilia
National Hemophilia Foundation: http://www.hemophilia.org/
Mayo Clinic: http://www.mayoclinic.com/health/hemophilia/DS00218
Huntington’s disease
Huntington's Disease Society of America: http://www.hdsa.org/
Mayo Clinic: http://www.mayoclinic.com/health/huntingtons-disease/DS00401
Klinefelters’ Syndrome
American Association for Klinefelter Syndrome Information and Support: http://www.aaksis.org/
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/klinefelterssyndrome.html
Marfan’s Syndrome
National Marfan Foundation: http://www.marfan.org/marfan/
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/marfansyndrome.html
Multiple Sclerosis
National Multiple Sclerosis Society: http://www.nmss.org/
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/multiplesclerosis.html
Muscular Dystrophy
The Muscular Dystrophy Association: http://www.mdausa.org/
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/musculardystrophy.html
Myotonic Dystrophy
International Myotonic Dystrophy Organization: http://www.myotonicdystrophy.org/
Mayo Clinic:
http://www.mayoclinic.com/health/muscular-dystrophy/DS00200/DSECTION=2
Obsessive-Compulsive Disorder
Obsessive Compulsive Foundation: http://www.ocfoundation.org/
Mayo Clinic:
http://www.mayoclinic.com/health/obsessive-compulsive-disorder/DS00189
Parkinson's Disease
National Parkinson's Foundation: http://www.parkinson.org/
Medline Plus (National Library of Medicine):
http://www.nlm.nih.gov/medlineplus/parkinsonsdisease.html
PKU (Phenylketonuria)
National PKU News: http://www.pkunews.org/
Medline Plus (National Library of Medicine):
http://www.nlm.nih.gov/medlineplus/phenylketonuria.html
Primordial Dwarfism
Nemours Foundation:
http://www.nemours.org/hospital/de/aidhc/service/skeletal/disorder/primordial-dwarfism.html
Progeria
The Progeria Research Foundation: http://www.progeriaresearch.org/
Medline Plus (National Library of Medicine):
http://www.nlm.nih.gov/medlineplus/ency/article/001657.htm
Sickle-cell anemia
The American Sickle Cell Association: http://www.ascaa.org/
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/sicklecellanemia.html
SCID (Severe Combined Immunodeficiency)
The SCID Homepage: http://www.scid.net/
Nemours Foundation: http://www.kidshealth.org/parent/medical/allergies/severe_immunodeficiency.html
Spina Bifida
Spina Bifida Association of
America
: http://www.sbaa.org/
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/spinabifida.html
Tay-Sachs Disease
National Tay-Sachs & Allied Diseases Association, Inc.: http://www.ntsad.org/
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/taysachsdisease.html
Turner’s Syndrome
The Magic Foundation’s Turner’s Syndrome Page: http://www.magicfoundation.org/www/docs/115/turner_syndrome.html
Medline Plus (National Library of Medicine): http://www.nlm.nih.gov/medlineplus/turnerssyndrome.html
Williams Syndrome
The Williams Syndrome Association: http://www.williams-syndrome.org/ |